Tag Archives: post-op

Recovery Road

Today is Day 4 of recovery.  If you’ve been following us on Facebook, you will know that it’s been a rough couple of days.

Sleepy BabyWe got home on Wednesday just after 10 am and Braxton played for a little bit and then settled in next to momma on the couch for a nap.  He was extremely sleepy most of the day, but he was also very restless.  He would sleep for about 15-20 minutes at a time, wake up, try to get comfortable and then drift off to sleep again.  Thankfully, he slept alright through the night only waking twice in pain.

Yesterday, I thought he was starting to look better.  He ate a little bit of Yogurt and Applesauce which I’m sure helped his throat.  He even played a little bit more than Wednesday, but he was still very sluggish and lethargic at times.  I decided to stop giving him the narcotic the doctor gave us and just try to manage his pain with regular Tylenol and Ibuprofen.  I felt like the narcotic was making him so sleepy even though he has had no issue with it when given after other surgeries.  I didn’t see an immediate improvement, but I gave it some time to get out of his system completely.  He had another good night Thursday and even slept late today!

SleepyWhile today has certainly been his best day, I’m still concerned about his low points.  He will play and then just lay down wherever he is and try to fall asleep.  I will move him next to me on the couch and he sleeps for a little while and then he wakes up like he doesn’t know where he is.  He looks very out of it and hasn’t even had the narcotic in over 24 hours at this point.  I have placed him on my chest and he will just sit there for quite some time without even falling asleep.  Occasionally, he does sleep and I just hold him until he wakes up. I’ve never seen him like this.

 

Our ENT’s office called earlier today to check in on him and I told them that he seemed pretty lethargic and asked if it was out of the ordinary.  The nurse didn’t seem to worry since he hasn’t had a fever and is having sufficient wet diapers.  She also warned that days 5-7 are the worst for recovery as the surgery site begins to heal and scab over.  So, it looks like we are in for a fun weekend.  The nurse said it’s not uncommon for children to complain of ear pain, neck pain, and just generally feel uncomfortable.  This is the point where it is frustrating for me to know that Braxton cannot express this pain and discomfort.  He has been so sluggish and I am fearful of keeping him on the narcotic only to make him more tired and out of it.  There are times when I can tell he is hurting by the face he makes so I give him extra cuddles and medicine if it’s time.  So, I’m thankful to have *some* clue, but I really wish it wasn’t a guessing game and he could tell me exactly what is going on.  Poor baby. 😦

This evening, Braxton is looking more like himself and playing and even laughing more which makes me very happy.  Braxton ate 8 ounces of applesauce today…yayyy!! It’s so nice to see a smile on his handsome face again.  I’m hoping the next few days won’t be so bad, but I’m preparing for the worst.  This is definitely the toughest recovery period of all the surgeries he’s had.  Even his hand surgery wasn’t this bad.  Keep praying for my sweet boy.

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When it rains, it pours

Yes, I’ve said it before, and no, it won’t be the last time either.  We had an extremely busy morning today.  Braxton woke up today with green gunk draining from his ears =/ Thankfully, we already had an appointment with his pediatrician scheduled at 8am.

Turns out Braxton has a double ear infection [his first since he had his tubes placed in April] and a sinus infection. That explains all the green junk from his ears and in his tummy yesterday.  More antibiotics to help the sinus infection and ear drops for the ear infection. Poor kid. I swear we’ve been in the pediatrician’s office at least every other week for him.  He’s been on more antibiotics than I care to mention.  And with the ear drainage we can’t put his hearing aids on. 😦 We’ve got to let his ear have air and let it drain and heal before we can use them again. Terrible setback.

After the pediatrician’s office we headed over to the Hand Surgeon’s office for Braxton’s post-op visit and bandage change.  Stupid mom forgot to give him pain medicine before we got there. I have NO idea why I didn’t think about it before we got there. But my heart just broke and I kicked myself once he started screaming and wouldn’t stop.  He was happy when the bandages came off, but once they started cleaning the site and putting on fresh bandages he started crying uncontrollably and it just tore me up.  PA said the surgery site looks good and is healing well.  The skin graft looks ok too. The stitches were still in place and she said they’d dissolve on their own. But oh my goodness! The Dr told me the site was small and only about half an inch, that graft is definitely NOT small! Braxton has a 2 inch gash on his arm right now. Sure, once he’s older you won’t even notice it, but for now his little arm looks terrible 😦 It took a good while for me to be able to calm him down. He cried off and on the whole way home.

Once I got home I gave him his pain medicine, went ahead and gave the first dose of antibiotic, and put the ear drops in. Even still, it was a good 20 minutes before I got him to really calm down.  I hung out with him for a minute before I had to head out to work and take him to daycare :/ He had a pretty good day though. I called to check on him a few times and when I picked up they said he had a pretty good day. No vomiting today (yayyyy) and he was actually pretty happy and laughing and smiling with the teachers and the other kids.  I can’t say enough nice things about our daycare. I love them all and I’m so grateful they are so good with Braxton. They all love him so much and take good care of him.

Now if we could only get this storm to pass, everything would be wonderful again.  I sure hope these meds kick in quick!

 

Brax finally resting after a long day. Poor kiddo.

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