Tag Archives: holidays

Through a Child’s Eyes

If we could see the world through a child’s eyes, we would see the magic in everything.

Watching Fireworks

We watched fireworks down the road from us tonight. I was a little worried about how Braxton would handle it, but he did great! I took his hearing aids out just in case it was too loud since he startles easily. Once the show started he was in complete awe. He watched pretty intently as the fireworks shot in to the sky. He followed them as they went up and was completely captivated. Aileen loved it too. She was shouting “This is the best 4th of July ever!” Haha

It was a good night. Happy 4th of July!! Hope you all had a great day.

Fireworks in the Sky

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Happy Easter, from all of us!

Since sister’s blog got the Easter preparation blog, Braxton can have the Easter day blog and it will be cross-posted over there ūüôā Be sure to check out the preparation blog to see our fun times filling eggs with candy and dying eggs with Kool-Aid! Sis did a fantastic job!!

As Braxton gets older, Holidays will become tougher, so I’m enjoying everything that I can right now. ¬†By tougher, I mean that for now he doesn’t care that he can’t eat all the sweets that come with Holiday gatherings, but later on I know he’ll start to feel left out and wonder why he can’t participate. ¬†What’s worse, is knowing that I may face some resistance from schools, family, and others about possibly including some non-food treats for things like Halloween, Valentines, and even Easter. ¬†I’m part of a few different groups where several moms have encountered this resistance, and it breaks my heart and I don’t look forward to the day I have to deal with that. ¬†But, with everything, I take this day-by-day. ¬†I don’t know what the future holds, maybe Braxton will be eating by then and we’ll have nothing to worry about! (Wishful thinking, but nothing wrong with having HOPE!)

Regardless, we had the most fantastic day! We woke up early and went to Church, after all, JESUS is the reason for today! Amazing sermon today and Braxton even stayed awake the entire time! He got a little restless and started showing off by standing and cruising along the seats next to us and even bouncing a little bit when he heard the music.  Little man amazes me everyday.  The Easter Bunny did make an appearance after Church and we got a picture although Brax was not amused.

After Church we came home to get ready to head out to visit my sister’s boyfriend’s family’s ranch. (Sufficiently confusing?) Our family doesn’t have many little kids running around anymore, so it was nice to get together with a big family and let the kids hunt for Easter eggs. Aileen had a blast with all that wide open space. ¬†She must have lived on a ranch in a past life…she LOVVESSS the animals! She also made some new friends and everyone got along…annnnd she made out like a bandit in the egg hunt. ¬†Braxton enjoyed exploring the new environment, but quickly went with what he knew best. ¬†He crawled right over to a window to look outside and chew on the window sill. ¬†We took him outside during the egg hunt and let him crawl around on the grass. ¬†We even set some eggs up around him and let him play with him. He was so content. ¬†It was truly a great day and although I am exhausted from this weekend, the smiles on my kid’s faces makes it all worthwhile.


Lots of pictures…of course ūüėČ

And just when I thought it was over, I stepped outside to take the trash out and there was one final surprise. The “real” Easter Bunny paid us a visit!! Found this little guy in our yard…I suppose he just wanted to wish us all a Happy Easter!

Happy Easter, from all of us!

Happy Easter, from all of us!


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Merry Christmas!

Christmas is upon us! It’s been a busy week tending to our normal routine and preparing for Christmas. ¬†The blenderized diet continues to go very well for us! Braxton is tolerating the blends and higher volumes with no problem. ¬†I’ll update more later with recipes and other information.

This holiday season has been full of so much joy for us.  Even through our struggles, we have been so blessed and I look forward to everything that is in store for us.  May your holidays be bright, full of joy, and bring you everything you desire.

Merry Christmas, from our family to yours!!


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We Are Thankful

‘Tis the season of giving thanks and this year we have so much to be thankful for. ¬†This time last year, Braxton was 5 months old and we were still trying to figure out what was next in our journey. ¬†We have all come a long way in the past year.

As a family, we are happier and stronger than we were last year. ¬†The undiagnosed journey has a way of turning lives completely upside down. ¬†Through the year we’ve learned how to handle the stresses of it all [We’re no experts, but I think we do pretty well] and are finally able to enjoy our lives to the fullest. Make no mistake, the path to this acceptance is a long and treacherous road, but if you can make it through, and you will make it through, it’s completely worth it.

Today and everyday we are so thankful to wake up and see Braxton’s smiling face another day. ¬†Once a doctor tells you that your child isn’t going to live more than a month, you truly realize the miracle that is life. ¬†I’m thankful for 6 am wake-ups because it means my child is alive. ¬†Braxton is so alive. ¬†He has come so far this year, heck he’s come so far in the past two months! Four months ago, Braxton couldn’t sit, couldn’t crawl, couldn’t stand, he just laid there and we had to do everything for him. ¬†Then, it was like a switch turned on for him. At 12 months he finally sat unassisted, 14 months he was moving from a sitting position to up on all fours trying to crawl and moving backwards, 15 months he was pivoting and moving with purpose, just before 16 months he finally started crawling, now at almost 17 months he is kneeling and pulling himself to stand….walking is not far away. We are so very thankful for each and every one of these steps. ¬†There are so many little things we take for granted in life, but when you are told your child can’t or probably won’t ever learn to do these very basic things, the extreme joy you feel inside when he accomplishes any single one of them is unexplainable. ¬†There are so many emotions at once – happiness, pride, joy, excitement, angst, anticipation for the next, and most importantly gratitude. ¬†We are so grateful, so thankful to see our child growing and thriving. ¬†He’s happy, he’s loving, he’s an adventurer, he’s a fighter, he’s a miracle, he’s the joy of our world. And there is still SO MUCH more in store for him and I can’t wait to see what goal he accomplishes next. ¬†For now, we are living in the moment and are ever so thankful for every minute he is in our lives.

Halfway There

This is just 2 weeks ago. Braxton could only manage to pull himself halfway up.

Standing Tall

This was just the other night. Braxton found his way all the way up.



Aileen and Mom

Thankful for my mini-me

To my daughter, Aileen. [She’s 6 and can’t read this, but I have to share] I am thankful for my daughter. I am thankful Joseph has taken her in as his own and has been amazing with her the past few years. ¬†I am thankful for her patience and impatience. I’m thankful that she makes me realize when I’m not being fair and ignoring her. I don’t mean to, but when your 6 year old tells you that she feels like you don’t play with her enough, it stings, but it’s honest, and I’m thankful for that honesty. ¬†This is still new to me, having a child with special needs, I’m still learning to balance having 2 kids. Expecting a 6 year old to be patient with that is asking adult things of a child, and I’m grateful she still loves me no matter what. She’s so smart and such an incredible little girl. She’s gotten much more helpful with Braxton and less jealous. Now that he’s moving, she can actually play with him. I’m thankful for those moments. I’m thankful that Braxton has an amazing big sister. I love you with all my heart.

Mom and Dad

To my other half, Joseph. This year has been full of ups and downs, smiles and tears, fun and sleepless nights. ¬†Thank you for being an amazing father. ¬†There are so many guys who would have run as fast and as far as they could from this situation, but you have been a wonderful man and here for us in so many ways. ¬†Thank you for running all over town because I booked 3 appointments in one day, thank you for waking up when you’re home so I can sleep, thank you for cooking and cleaning, thank you for sticking with a job that keeps you away because you know it provides for us. ¬†Thank you for everything you do for me and our family. ¬†I love you more than you’ll ever know.

We are thankful for our therapists. Oh gosh, our therapists! I love them! All of them!! They are so much more than therapists…they are our friends, they are our family. ¬†They love and care for Braxton not as patients, but as children of their own. ¬†I am so thankful our team has such incredible passion for what they do and aren’t just here for a paycheck. ¬†They go through all our joy and sorrow with us. They cheer in excitement when I send them a video of Braxton doing something for the first time. They share my frustration when he regresses and we can’t seem to figure out why. ¬†They answer every one of my questions, never tiring or making me feel like a burden. ¬†I know you guys read this, thank you. I can’t say that enough. Thank you for all that you do and for loving our child, we are so thankful that you helped him get where he is today. ¬†I watch him crawl, pick up a toy, take a few bites of food and I’m just in awe of the things you helped us do…things I never thought he’d do, but he does because you helped us.

We are thankful for our family and friends. Family is important in times like these and our families have been great. ¬†Our family is there to answer our calls and hear our cries and join in our joys and sorrows. ¬†They are here to watch Braxton when we have to work or need a short break to regain our strength. To our family, we love you and thank you. ¬†To our friends, you don’t know how much it means to us to see you share our story or to see your words of encouragement when we express frustration because we’re at the doctor for the gazillionth time. ¬†To understand that it’s a huge deal when we post statuses about milestones Braxton should have reached months ago, to see you share in our excitement without judgement is a blessing. ¬†Thank you, each of you is amazing.

We are thankful for our readers. ¬†We started this blog to keep our friends and family updated, but we’ve received so much support from complete strangers. ¬†Thank you for your love and positivity. ¬†We’re at over 7,600 views in just a few short months of me starting this blog and I still can’t ¬†believe the impact it’s had. ¬†To everyone who reads this, thank you. Thank you for taking time to enter our world. Thank you for taking the time to like, comment, or email us. We are so appreciative.

Today and everyday, we are thankful.  Happy Thanksgiving to you and yours!

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