Tag Archives: feeding therapy

Finally, a Breakthrough

Yummy in my tummy!

Yummy in my tummy!

Ladies and Gentlemen, it’s safe to say Braxton has finally made a HUGE breakthrough in feeding!! After a very long 15 months, Braxton is eating again! AND he enjoys it!

When Braxton was about 10 months old we started working on solid baby foods and he took to them right away. He was eating 4 ounces of pureed baby food 3 times a day and even drinking 6 ounce bottles.  At 14 months old, he came down with pneumonia and was hospitalized for 5 days.  After that, he began vomiting everything that we tried to feed him and he made a huge regression.  He stopped eating completely.  As he was vomiting so often, he quickly learned that anything that went in his mouth would make him feel bad, so the natural solution is to not let anything near your mouth.

We have struggled for nearly 15 months for every single bite of food we could possibly get him to eat to overcome this severe oral aversion.  We tried so many different strategies to make feeding fun and enjoyable, let him dictate the flow of things, and nothing seemed to help.  We switched over to a homemade blended diet last December, and since then Braxton has completely turned around.  He hasn’t vomited in a year now, so he is learning that it is safe to eat again without having anything bad happen.  A few months ago, he started to eat in Speech Therapy with his therapist.  Then, he started to eat for his teachers, but still he would not eat for us at home.  I felt so defeated and like a failure. Mommy guilt hit hard when others were more successful at feeding my child than I was, but we kept working.  Occasionally, he would eat about an ounce, maybe two ounces for me, but not much more.  However, we finally have success!

Last week, our speech therapist called to say that Braxton ate TWO WHOLE pouches of pureed food that I had for him at daycare.  That’s EIGHT ounces!!! When I brought him home, we tried again and he ate another 4 ounces! The next day at daycare, he ate SIX ounces! Over the weekend, he ate at least 4 ounces for me each day and with every feeding, he is getting so much better.  He is finally actively opening his mouth, coming toward the spoon, and even searching for the food as if I’m not getting it to him fast enough! I am so overwhelmed with joy to see Braxton eating and actually enjoying it! We have waited so long and worked so hard for this moment.

We are still a very long way from having Braxton’s feeding tube removed, but he is making steady progress.  I can’t tell you how frustrating it’s been along the way, to see him make progress only to be setback over and over again.  We are hopeful this time that we will continue to move forward.  He is still eating mostly pureed foods, but as his success continues, we will move toward more textured foods and then hopefully more table foods.  We offer him lots of finger foods, dry cereal, cookies, biter biscuits, and things like that, but he still isn’t quite as successful getting those to his mouth and IN his mouth.  He will just hit them against his chin and then throw it down.  Right now, I’m just happy he is eating anything at all.  We are so excited! Yea, Braxton!

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Filed under Family, Kids and Family, Special Needs Child

Baby Steps

It’s been a pretty good week for us and little by little Braxton is continuing to make progress.  He’s crawling like crazy! One minute he’s at my feet and the next he’s in another room. He’s fascinated by everything around the house. He loves to go to the windows and pull the curtains back and forth. I’m constantly moving him back so he doesn’t pull them down! These days sound something like…”Braxton, get down – Braxton don’t touch that – No sir! – Braxton come here!” Hahaha we’re really in for it. He’s starting to really try to pull up on things to stand. He can get to a kneel and he pushes up on his feet but can’t quite stand up yet. It’s only a matter of time though!

We continue to work with our speech therapist to get Braxton eating again.  The periactin seems to have at least gotten Brax to be able to tolerate a full 8 ounce feed every 4 hours and he’s eating a little by mouth.  We’re really trying to work through the aversion he’s developed so just little by little introducing things by mouth. Basically starting over like we did when we started solids several months ago.  He’s making some progress though.  We started using a Z-Vibe with our therapist which has been working great! We decided to go ahead and purchase one ourselves to continue making forward progress.  The Z-Vibe is a vibrating handle with interchangeable tips to help with feeding and oral motor stimulation.  One of the tips is a textured spoon and with Braxton still teething he’s done really well with it.  He definitely likes the vibration and the texture against his gums and is eating with it too.  Our personal Z-Vibe came in today! I tried it for his afternoon feed and got him to eat a little less than an ounce! Considering we’ve only been able to get him to take about 5 bites, this is really exciting!! He’s taken about half an ounce or a little more with the speech therapist too, so it looks like we’re making progress.  🙂

Also trying to get a handle on the Gastric Dumping, so we’ve started to monitor blood sugar levels throughout the day too.  We went last week to to see the Endocrinologist to get a Glucose Monitor and learned to use it. Just one more step in his feeding process.  Didn’t think I’d be able to poke him so much to get his readings, but he doesn’t seem to fuss about it too much thankfully. We also followed up with the Audiologist this week to get new ear molds made for Braxton’s Hearing Aids as he is continuing to grow. She adjusted the volume levels on the aids too and it seems like he’s already responding better!

Baby steps add up to giant leaps. May not seem like much now, but with every step Braxton makes he gets closer and closer to every goal in place.

Today was picture day at daycare 🙂

Always so serious

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Filed under Family, Kids and Family, Life, Special Needs Child