Tag Archives: developmental delay

Braxton is BEY-AWESOME!

Braxton is awesome! He’s so awesome. He’s beyond awesome! He’s bey-awesome!

You might recognize that if you’ve seen “Bolt” 467423 times (but who’s counting) and remember Rhino saying that into the A/C vent. If not, let me refresh your memory ūüėČ

 

Braxton has been doing some really incredible things lately. I can’t even believe his awesomeness right now! ¬† As you know, Braxton has been making great progress walking as long as we hold one of his hands. ¬†He is getting much faster and able to maintain his balance much better. ¬†Well, on Wednesday, he was off of school so we had his Physical Therapy session here at home. Then, this happened….

Yes! Your eyes did not deceive you. Braxton took his FIRST independent steps in therapy. ¬†He took up to 5 steps at a time at least twice and then 2-3 steps each time after. ¬†It was pure coincidence at first. ¬†I was walking Brax to his therapist when I slowly let go and he kept walking!! We were both surprised and decided to test him and sure enough, another 2 steps. ¬†I made Aileen grab my phone and start recording. ¬†Braxton took small steps multiple times in therapy. It was so awesome to see and I’m so glad I caught it on video.

Happy ThanksgivingFor Thanksgiving, we visited Joseph’s parents and Braxton showed off his walking skills and even took a couple independent steps for his grandparents. ¬†He really enjoyed sitting on the front porch in a rocking chair slowly rocking himself in the cool breeze. ¬†A year ago he was only starting to crawl, so it was like a totally different child was visiting this time. ¬†Braxton enjoyed exploring his grandparent’s house and gave grandma and grandpa lots of love.

Friday, we drove back home because Braxton had a Physical Therapy session in the afternoon. ¬†He wasted no time showing us he was still working on walking. ¬†He took 6-7 independent steps TWICE!! The second time, he might have taken 2-3 more steps, but his therapist ran out of room to back up so Braxton just kneeled when he got to his therapist. Then, Braxton got a little diva-ish and decided he was ‘all done’ with therapy and refused to even stand. Little stinker!

His awesomeness did not end there. ¬†Tonight, he managed to walk up stairs with me! My back has been killing me all day, and I could barely bend over to pick him up, so we walked over to the stairs. ¬†As I started to try to pick him up, he picked up his little leg and placed it on the stair in front of him. ¬†In disbelief, I waited to see what he would do next and sure enough, he beared his weight and pulled on my hand to lift himself up. ¬†And without prompting, he repeated the action to go up the next step. ¬†I know that he isn’t technically ready for stairs and his PT might even discourage it a little, but Braxton definitely understood what he was doing and he honestly only need help to stay upright, and I used my leg as his backboard so he could push up and off of me as needed, but he did all the work. ¬†He even reached out to the handrail for balance and to pull himself up! I tried to get him to do it again so I could catch video, but he wasn’t feeling it. ¬†Nevertheless, he is making INCREDIBLE progress!! I am sooo excited!

Braxton is truly beyond awesome! He’s bey-awesome!! Look out world, here comes Braxton!

Braxton Walking

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Wordless Wednesday: Look Who’s Standing

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Braxton standing without support during PT today

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June 26, 2013 · 2:26 pm

Braxton’s 2nd Birthday

Happy 2nd Birthday, Braxton!

Happy 2nd Birthday, Braxton!

Braxton will be 2 years old tomorrow! Today, we had a few friends and family over to celebrate with us. He wasn’t quite himself today though. ūüė¶ I’m not sure if he is coming down with something, or if he was just overwhelmed with everyone. Nevertheless, we had a nice day. We set up an inflatable pool for Aileen and some of her friends. Braxton slept through the first part of his party or he would have been in the pool too! When he finally woke up we did cake and presents. He got lots of goodies!

I still can’t believe Braxton is 2 years old! The past 2 years have been incredible and crazy all at the same time. 2 years ago we were told our son wouldn’t live for 2 weeks and we had no idea what the future held for him and for us. Now, we have a diagnosis, a better idea of what his future might hold, and so much more hope. So many things we thought he would never do, we now see him trying to do and know, that in time, he WILL do them.

At 2 years old, Braxton is developmentally about 10-11 months. He definitely has crawling down! He is all over the place. He is pulling to stand pretty much every chance he gets and will even hold on with one hand, or bend and stoop from standing and get himself back up. If we hold his hands he will take a few steps before he drops down and crawls off instead. He is cruising furniture a little bit and able to transition from one object to another while standing without losing balance. Braxton is still babbling and making a lot of sounds. Just because the research says he won’t talk, doesn’t mean we will stop trying to get him to talk. We talk to Braxton ALL the time, sign to him the signs that we know, sing to him, give him toys that play music and he is responsive! Braxton is even doing really well with the iPad! He used to bang his head on it or try and eat it, and now he is finally using his hands instead of his head or mouth. This is great since we will be considering a communication device for him. It’s so nice to see everything clicking for him.

Happy 2nd birthday, little man! Keep on writing your amazing story, I know you will continue to surprise us all.

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Typical, Yet Far From Typical

Big Good Morning Smile from Brax

Big Good Morning Smile from Brax

Here lately, Braxton has made some significant progress. ¬†As he is getting older, he is “catching up” on some things, yet far behind in others. ¬†I catch myself thinking, yup that’s what a toddler is SUPPOSED to be doing. ¬†Or saying things like, boy it’s like we have a real toddler around here! (Obviously, he’s real, but he’s not at all been a typical toddler until recently) Braxton will be 2 years old next month (I can’t believe it!), but developmentally, he is still at about 10-11 months I’d say. ¬†For instance, he is crawling fantastically and pulling up to stand and trying to cruise, which is typical for a 9 – 10 month old. ¬†Once he really starts walking, I’m certain he will make so much more progress. ¬†He’s getting pretty good. Here he is during a Physical therapy session doing some assisted walking…he took 30 steps while I was there for the tail end of the session.

Toys all around him.

Toys all around him.

Braxton is also doing really great with exploring his environment. ¬†One minute he’s at the patio door and the next he’s in his therapy room with all the toys in the middle of the floor. ¬†Yup, typical toddler leaving a path of destruction behind him. ¬†For a long time, Braxton just sat next to us, slept, and pretty much did nothing. We’d play with him and there was no registered emotion. ¬†Now, I walk in to a room and he’s pulled toys off the shelf, emptied toy bins, and crawling over to another toy and playing all on his own. ¬†When we sit and play with him, he is actually quite interactive and will laugh and smile the whole time. ¬†Especially when sister plays with him. He likes to pretend to knock her over and when she exaggerates the fall, he thinks it’s hilarious. ¬†The sound of laughter fills my home and heart.

Are you talking to me?

Are you talking to me?

Braxton now also knows his name. ¬†Just one other thing we don’t realize actually has to be learned. ¬†I would call him all day long and get nothing in return. But a toy goes off and his head whips around. At first, I figured he was being a typical toddler by ignoring mom and only paying attention to cool toys, but it’s just taken some time for him to learn we’re talking to him and not the wall. ¬†In the past couple weeks, I have called his name and he turns around with a big smile on his face. Or if he’s across the room, he turns around, sees me, smiles real big, and crawls as fast as he can over to me. ¬†It’s the sweetest thing, but it’s been a long time coming. ¬†I never thought it’d be almost 2 years before he understood much of anything. ¬†He knows his name now, and that’s huge.

Another typical toddler thing he’s doing is dropping things on purpose and then crying dramatically to sucker mom into picking him up. ¬†I have sat and watched him literally stick his pacifier over the edge of the play pen, swing it around, and then throw it. ¬†He then stares at it, and then goes in to full on crocodile tears and drops to the floor just to make sure mom knows he’s really upset. ¬†I just laugh.


Braxton is doing so well and I just love watching him develop. ¬†Each and every accomplishment is celebrated in our home. ¬†I am often so overwhelmed with joy that I just cry thinking of all the things he is doing that no one ever thought he’d do. ¬†I’ve read the reports, I’ve talked to our therapists..they were all really worried at first, and so were we. And now, we all rejoice with his progress. ¬†He never ceases to amaze us with his courage and determination. ¬†Some days, in some moments, he’s just like any other typical toddler, although in reality he is behind and ¬†so far from typical. ¬†One thing is for sure, he is one extraordinary little boy who is going to continue to defy the odds and surprise us all.

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Braxton and Mommy Day

BIG Smile for momma :)

BIG Smile for momma ūüôā

It’s been a while since Braxton and I had a day to ourselves. Aileen is with her dad this weekend and Joseph is gone for business, so it was just Brax and me. We had a pretty laid back day, but I noticed so many new things today and in the past week or so.

Braxton is really starting to recognize us and show emotion when does. In the past few weeks, every time I go to pick him up from his crib I stand over him and when he looks up and notices me, he flashes a huge smile. When I put my hands out and motion “come here” he gets noticeably excited and immediately rolls over, pushes himself up to his knees, looks right up at me and puts his hands out as if to say “pick me up, mommy!” Sometimes he will pull himself to a stand and kind of bounce in excitement. If I have to be up early, that is certainly what I want to wake up to. This is a picture my sister took when she saw him, but this is pretty much exactly what he does when I stand over his crib in the morning.

I see you!

I see you!

We came downstairs so I could feed him and I also tried to give him some applesauce by mouth. Surprisingly, he actually ate a good amount for me! Braxton ate about an ounce at breakfast and just over an ounce at lunch and dinner…yayyy!! It may not seem like much, but this is HUGE for him! He hasn’t been eating much of anything for us. It’s so funny because he puts everything, and I do mean EVERYTHING (that isn’t food) directly into his mouth and tries to chew on it. But if he even sees anything at all food related, he purses his lips, turns his head, and even puts his hand out to push me away – and sometimes screams and cries if I continue trying. I’ve tried everything from baby food, cookies, crackers, cheetos, french fries, pudding, yogurt…and every one of them as soon as they get anywhere near his face he refuses. So, getting even a few bites in is a big deal, an entire ounce is a HUGE deal, indeed! Our Speech Therapist is still very diligently working with Braxton, too. I got this photo the other day…apparently eating is also pretty hard work! He fell asleep today, too, after I fed him.

Nap after a full belly

Nap after a full belly

 

Braxton and I played a whole lot today! He is so much more interactive now and playing with purpose!! He actually mouthed his toys a lot less today than he normally does. He stood up at his little piano and played using his hands instead of his mouth. He even leaned over to find the buttons on the back and played with those. We made silly sounds back and forth to each other and when he made me laugh, hearing me laugh made him also laugh..it was so cute. We read a few books and it’s evident that Braxton actually likes being read to. He will sit still in my lap as I read to him (ok, point out pictures and describe what we see, but still) and is turning the page all by himself! [Thanks to our great Occupational Therapist, he’s doing soooo great with that….little bit less cheating today by reaching over with his left hand haha smart kid.] He even made some great transfers from our couch to the coffee table and cruised around the table!! Pretty impressive, little man! Showing off all the things he’s been working so hard to accomplish with each of his therapists. He of course sat at his patio window and I sat with him and pointed out the trees and the birds as they came in to the yard. Nice to just sit and be still.

We also went to the grocery store today, and Brax was so funny. He was making all kinds of sounds as we walked around the store. Also, as I was waiting to check out, I had my hands on the grocery cart (like I always do) and Braxton kept reaching out to me. So I turned my hands over so he could pat them like he often does, but he started clasping his hands around them and trying to pull them toward him. Each time I moved my hands like I was moving toward him he smiled and got really excited. Then, he finally grabbed my hands and pulled them to his side, and I finally realized what he was doing…he wanted me to pick him up AND he was telling me!!! This is the 2nd time he’s done this to me at the store. I tickled him and gave him a big hug and kiss since it was my turn in line and I had to put the groceries on the belt and check out. It was so awesome to see this kind of communication though. This is SO much more than he’s ever done before. Around the house, he does crawl up to us and look up and raise his hands until we pick him up, and if we walk away he cries big ol’ crocodile tears! haha Seeing him do something similar while we were out and about though, was a whole new level.

Not too long ago, I arrived at Aileen’s school to pick her up and I got Braxton out of the car, as we walked in the school, he put his little face right up to me and I felt his lips on my cheek. He caught me by surprise and when I turned to look at him he flashed me his big smile. It was the sweetest and most heart melting non-verbal “I love you” ever. Seems like ever since I wrote the post about wanting Braxton to talk, he’s been doing more things to communicate with me. Kids can usually pick up on feelings and always seem to find a way to comfort you as if you told them exactly what was going on. Or perhaps, God is working through Braxton to remind me that everything is going to be ok. To just trust in Him and the plans He has for our life. Just because things aren’t exactly how I imagined they would be, doesn’t mean that things aren’t exactly as they should be. I know that everything happens for a reason, and although waiting for that reason to become apparent is often very difficult, I am reminded that the important thing is to cherish the moments now, to live in the present and let God take care of our future.

Today has been such a great day with Braxton. I see all of the great things Braxton is doing and my heart is just so overwhelmed with joy. The simplest things, like turning a page in a book, I now understand exactly how much work went in to that and how things like that we take for granted each and every day. Days like today make me hold Braxton as he falls asleep, and when he finally does I watch him and tears just stream down my face. Not tears of sadness, but tears of joy, so much joy, as I think about where he was and where he is today. To see him do all of the things so many led me to believe he would never do, is such a miracle. To realize that he IS in fact developing communication skills and learning to communicate with us is such an indescribable feeling. This little boy never ceases to amaze me, and I can’t wait to see what happens next.

Sweet little boy asleep in momma's arms <3

Sweet little boy asleep in momma’s arms ‚̧

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