Since sister’s blog got the Easter preparation blog, Braxton can have the Easter day blog and it will be cross-posted over there 🙂 Be sure to check out the preparation blog to see our fun times filling eggs with candy and dying eggs with Kool-Aid! Sis did a fantastic job!!
As Braxton gets older, Holidays will become tougher, so I’m enjoying everything that I can right now. By tougher, I mean that for now he doesn’t care that he can’t eat all the sweets that come with Holiday gatherings, but later on I know he’ll start to feel left out and wonder why he can’t participate. What’s worse, is knowing that I may face some resistance from schools, family, and others about possibly including some non-food treats for things like Halloween, Valentines, and even Easter. I’m part of a few different groups where several moms have encountered this resistance, and it breaks my heart and I don’t look forward to the day I have to deal with that. But, with everything, I take this day-by-day. I don’t know what the future holds, maybe Braxton will be eating by then and we’ll have nothing to worry about! (Wishful thinking, but nothing wrong with having HOPE!)
Regardless, we had the most fantastic day! We woke up early and went to Church, after all, JESUS is the reason for today! Amazing sermon today and Braxton even stayed awake the entire time! He got a little restless and started showing off by standing and cruising along the seats next to us and even bouncing a little bit when he heard the music. Little man amazes me everyday. The Easter Bunny did make an appearance after Church and we got a picture although Brax was not amused.
Aileen showing off her Easter outfit.
No show-off is complete without a good twirl!
Braxton and Aileen with the Easter Bunny
After Church we came home to get ready to head out to visit my sister’s boyfriend’s family’s ranch. (Sufficiently confusing?) Our family doesn’t have many little kids running around anymore, so it was nice to get together with a big family and let the kids hunt for Easter eggs. Aileen had a blast with all that wide open space. She must have lived on a ranch in a past life…she LOVVESSS the animals! She also made some new friends and everyone got along…annnnd she made out like a bandit in the egg hunt. Braxton enjoyed exploring the new environment, but quickly went with what he knew best. He crawled right over to a window to look outside and chew on the window sill. We took him outside during the egg hunt and let him crawl around on the grass. We even set some eggs up around him and let him play with him. He was so content. It was truly a great day and although I am exhausted from this weekend, the smiles on my kid’s faces makes it all worthwhile.
Lots of pictures…of course 😉
He found the Window right away
Thomas the Train
Look at that handsome boy!
BIG Smile for momma 🙂
Braxton crawling around in the grass
Braxton “hunting” eggs
Trying to eat the eggs
Reaching for an egg 🙂
He got the egg with one hand
Reaching for another
Hmm….wonder who took this one? 😉
Aileen hunting eggs
Looking for eggs
still finding eggs
Hold my eggs mom!
She did not like mom’s sneak attack
So she popped me pretty good
So I tickled her
She hit the Easter Jackpot
After the eggs were gone, she hunted pecans
You know your kids had fun when they crash on the ride home 😉
Some of my faves
And just when I thought it was over, I stepped outside to take the trash out and there was one final surprise. The “real” Easter Bunny paid us a visit!! Found this little guy in our yard…I suppose he just wanted to wish us all a Happy Easter!
Happy Easter, from all of us!
The rain ALMOST spoiled our plans for today. It was pouring down rain this morning and I came pretty close to staying home instead of going to Church like I wanted. Seems like there’s always something holding me back, so I made the choice to go despite the rain. Besides, a little rain never hurt anyone, right?
Well, I am SO thankful I went! We went to PromiseLand Church in San Marcos just down the road from us. Joseph and I have been talking about going back to Church and with the move we finally decided now was the time. I spent some time researching churches nearby and found one we could try. Then, I remembered one of my very good friends had mentioned the Church she goes to now had a location South. When I learned it was in San Marcos, I visited the website and stumbled across the link for a blog the pastor set up for his special needs daughter, Made Meaningful. I read just about every post and the tears just kept streaming. I was so moved and so inspired, I knew this is the connection we needed to help us through this journey. As I mentioned in a previous blog [He qualifies the called], Joseph and I wholeheartedly believe God has been present in our lives since Braxton’s birth. It’s high time for us to re-connect with Him and thank Him for the many blessings bestowed upon us.
Got up, got dressed, got the kids dressed and off we went. The music was great, the sermon was great, the people were great. Aileen went to a class with other kids and Braxton stayed with me in Church. He did really well. Actually, fell asleep about halfway through. Lots of people stopped to comment on Braxton and how cute he was [it’s the eyelashes I tell ya. He’s gonna be a heartbreaker.] When I went to get Aileen from class, I noticed a sign…”Special Needs” above a classroom in the student center. I peeked in and saw the pastor’s wife and daughter. I was thrilled. Thrilled that a Church actually had a designated area for special needs children and thrilled to have the chance to speak to the pastor’s wife, Erica. As I told her how we found the Church and their story and told her about Braxton and our story, something just broke inside me and tears just started rolling. I have no idea why, but I just cried. I pulled myself together and spoke with her for a minute and met their 3 children and then we went back over to the Church to meet her husband, Pastor Robin. They are such nice people and I really look forward to being a part of the church and getting to know them and everyone there!
After Church, I promised to take Aileen to a fishing event, and it was so fun! It was sponsored by Core Health Alliance and they were raising money to actually build an accessible fishing pier on Lady Bird Lake to make fishing accessible for all. They had several community booths set up for information on making homes accessible and other fun things like Frozen yogurt stands, taco stand, local radio station booth, and of course an area for fishing. They had a large pool set up with catfish and allowed kids to try and catch the fish and then release them back in to the pool. Poor Aileen, it took FOR-EV-ERRRR!!! But, she finally caught a fish! She was so excited. Once the kids caught a fish there was a booth set up to give out fishing trophies and free fishing poles. You would have thought Aileen won a true fishing tournament. She was extremely excited to get a little ol’ plastic fish trophy. She had so much fun and to see her eyes light up with excitement really made it all worth it. It’s amazing how we as adults forget to be thankful for the little things.
Overall, it’s been a GREAT day! We’ve had so much fun this weekend! Now, to prepare for the week. Aileen has to get ready for school tomorrow and Braxton has a few appointments this week. Tomorrow we see GI to finally get the results from the Gastric Emptying Scan and hopefully some more answers as to why Brax isn’t eating. Wednesday we follow up with the ENT to check on Braxton’s ear tubes and then we see the Orthopedic doctor for the first time to rule out any hip/spine issues that could cause any issues later on. Check back for updates and hope you all have a great week too!! 🙂
Brax all ready for Church 🙂
Getting ready to fish
Ready to fish
Trying to catch a fish
Where’s my fish!?
Pool of Catfish
Brax wiggled around trying to get a better look
[im] patiently waiting for sister to catch a fish
Aileen caught a fish!!
Bringing it in to release it
Removing the hook to release the fish back in to the pool
The fish she caught
She was so proud of herself
She got to pose like she won a tourney
Aileen was so excited to get her trophy
Good Morning and Happy Saturday!!! Fun-filled weekend planned for myself and the kiddos. Dad is working, so it’s just us.
Today, we will be attending a luncheon with U.R. Our Hope at Iron Cactus – yum! – Since I’ve finally worked up the courage to share Braxton’s story, I figure it’s time now to start getting more involved with organizations for special needs children or kids with rare/undiagnosed syndromes like Braxton. I think all this time worrying about Braxton, I didn’t realize MY own NEED to find people who can empathize and know exactly what it’s like to be in our shoes. “You waited HOW LONG to see that Dr?” “OMG, Me TOO!!” I didn’t realize how important those conversations are to help me through my frustrations. I’m very excited to start paying it forward and finding more ways to be involved. 🙂
Then, as you know, mom is a UT graduate so there’s this little ol’ rivalry game today, so after the luncheon we’re rushing home to catch the rest of the game. Hook ’em Horns! \\m// hehe
Tomorrow, I am planning to take the kiddos to check out a new Church since we’ve moved. I did a little research and turns out the pastor of that church has a daughter with special needs [I believe she has a form of hydrocephalus – water on the brain] so again, I think it will be good for us to find some additional guidance through our journey from people who have shared our experiences. Looking forward to it!
After Church, I found out about an event close to downtown Austin for special needs kids. There will be fishing in Lady Bird Lake and other games/entertainment. Hoping it doesn’t rain so I can take the kids!
Probably will be pretty exhausting, but should be tons of FUN for the kids and I – and that is totally worth it! 🙂