Today was a pretty exciting day for us! A while back, our friend, Dr. Mary Elizabeth Parker of U.R. Our Hope asked us to be on a Blog Talk Radio Show with Hari Khalsa to talk about how the journey changes once you finally have a diagnosis. We were also able to contact KXAN to help promote the radio show and also give them an update after our visit back in February.
We were scheduled to be on KXAN today, but unfortunately the station was covering the French Open and wasn’t able to have a noon newscast. They asked us to come in anyway and we taped our segment instead. It will air Monday, June 17th!! As soon as a link is available, I will post it. But again, the staff was so incredibly nice and it was a great experience.
We did go on with the radio show as planned though! Hari Khalsa, The Healthcare Whisperer, is a Nurse Practitioner and Patient Healthcare advocate and her radio show features patient stories about navigating the healthcare system. In the past, she’s interviewed some of the other families in U.R. Our Hope about their undiagnosed journey and of course Dr. Parker about the organization in general. Today’s show was about how that journey changes once you finally have a diagnosis. Myself and another mom I’ve met through U.R. Our Hope had a chance to share our stories and what the journey has been like for us since getting our diagnosis. This was such a wonderful opportunity and I’m so grateful to Hari for having us on and to Mary Elizabeth for thinking about us to be on the show.
You can listen to the show in it’s entirety by clicking this link or listening below! The show is an hour long, so you can definitely bookmark it and come back, or save it so you can listen while you’re stuck in traffic.