Braxton lives at home with his mom, dad and big sister, Aileen. Never in a million years did we think we’d have a child with special needs, and now that we do, it’s been quite an experience for us all.
Mom is Vanessa. Vanessa works from home as the referral coordinator for a small pediatric therapy group. She holds a Bachelors degree in Communication Studies from the University of Texas at Austin. Thankfully, her current employer has been great with understanding Braxton’s condition and allows her to take the time off she needs for Braxton’s therapy and doctor’s appointments.
Dad is Joseph. Joseph works out of the home as a rig manaager on an oil rig for Patterson UTI. His schedule is pretty hectic and keeps him away a lot, but when he is home, he is absolutely amazing with Braxton. When he’s home, Joseph keeps Brax at home instead of sending him to daycare. That quality time is really beneficial for them both. Joseph remains in contact when he is away and is very active in Braxton’s goals.
And lastly, is big sister, Aileen. Aileen is 9 years old and loves her little brother to death. At first, it was difficult for her to understand why he was in NICU for 3 weeks and why we had so many appointments for Braxton and not her. Jealousy was tough. Now, she is doing better and helping with Braxton in any way that she can. There are still some bouts of Jealousy here and there, but overall she’s been pretty good with him. She can’t wait for him to be mobile so she can chase him around the house. Lord help us all when that happens!! You can read her blog here.