5 responses to “World RTS Day 2014

  1. When I think that life is unbearable or unfair I think about Braxton’s defiant smile in the face of all his challenges. He lives fully and happily with an unwelcomed intruder inside his body. What can I say? He makes me realize how blessed and strong I am. Thank you, Braxton. The world is blessed to have you in it.

  2. Abby

    I somehow cam across your and Braxton’s story. I can relate in so many ways as our oldest brother who is now 33 was diagnosed at birth with RTS. Everyday is surely a journey but we wouldn’t trade it for the world. Doctors said he would never walk or talk, well at age five he started doing both! Our family loves meeting and discussing RTS with the others around the country. Great story Braxton and wonderful smile!

  3. Amber

    My uncle was diagnosed with rts in 1961. They said he wouldn’t live passed 13, they said he would never walk, read, or write. I’m here today to say he is 54, he can read, he can write, he has a routine, he has to say hello and were do you work to everyone, he is the most gentle person you would ever want to meet. I am so thankful. He doesn’t feel pain which is very worrisome, he only had 1 concern a few years ago when he got the hiccups and the threw up, we took him to the er and he had to go into surgery for an intestinal blockage. The doctors said it was horrific pain but not once did he complain. There are no words to describe how I feel about the uncertainty and lack of research. I only know that each day is precious. I could write a book, please let me know if there are any questions, maybe I could answer. Regards

  4. nakia

    Thank you for your story. My son Keiryns turns 6 tomorrow. He has Rts. I feel much better when I’m reminded I’m not the only one. It’s so rare we are all so spread out. Love the internet!! Couldn’t deal with out everyone’s stories. Maybe one I’ll be able to share the whole thing.but for now we’ll let this story get a little longer

  5. Pingback: World RTS Day 2016: Beyond the Medical Facts | Journey Full of Life

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