With so much turmoil in the world and our own stressful and emotional week, I was very much looking for a distraction to keep my mind off things. Today, we joined our amazing friends of U.R. Our Hope at Morgan’s Wonderland in San Antonio. While I wanted a distraction and to not think about our very recent diagnosis, instead I found myself willingly talking about it with the other families and by the end of the day, I had a reminder of how wonderful our life is and the gift we have been given.
After 21 months of being undiagnosed, we had truly formed a bond with many of the families we met who were on the same journey, so they had complete understanding of what we were going through every step of the way. In U.R. Our Hope we have a second family and a strong support group. I love our monthly meetings and getting to see everyone and how well the kids are doing and just getting to talk about everything. Although we have a diagnosis, we’ll still be very much a part of U.R. Our Hope and they will always have a special place in my heart for helping me heal when I didn’t even realize I needed to be.
Having formed real friendships with some of the other moms, they were genuinely interested in hearing our news about the diagnosis and talking it out with me. The more I talked about it and said everything out loud, the more my understanding and acceptance grew. Yes, there is still a long road ahead and I still have many questions, but for now, I’m content with the answers I have. The other moms also helped me to see the good and hope that exists within our diagnosis. I needed that outside perspective and I’m so thankful to have gotten it today.
In addition to talking, as I watched Braxton laugh and play I was reminded of my own words to embrace this life we have been given and take it day by day. This loving and joyful child in front of me is such a gift and he is going to write his own story. Everything is absolutely going to be okay.
I saw so much joy today and my heart is full again. Not just Braxton, but the smiles on all of the other kids in our group was exactly what I needed. Braxton loved the park and we’ll surely be going again! I was a little worried at first if he’d like it or even be able to do anything, but he was able to do everything! We rode on the carousel, he got to drive a car, he LOVED the swings, we rode a train through the park, and his favorite was the Xylophones set up in the middle of the park. Braxton definitely has the love of music in his genes. He was in the best mood today, and at lunch time we played peek-a-boo!
I’m so grateful to have a place like Morgan’s Wonderland to take him to! It was a fantastic day!
Picture Overload from today 🙂