Remember the Moments

“We do not remember the days, we remember the moments” – Cesare Pavese

Today was a pretty amazing day.  Definitely didn’t start out that way, but something amazing happened that I will always remember.

Today, we had a follow up with our GI doctor; our first since having switched over to the blenderized diet.  Started out just as any other appointment, waiting room, exam room, routine height and weight, nothing special.  Braxton is now 26.3 pounds and 32 inches long! He has gained a little over a pound since we started the new diet 6 weeks ago.  He is continuing along his growth patterns just fine.  When our doctor came in, he went through his normal routine of questions to see what has changed.  For the first time, in a long time, I was able to tell him that everything had been great! Braxton has vomited maybe 4 times in 6 weeks (and each time was due to feeding him too quickly and not anything to do with intolerance of the homemade blend). This is a HUGE turnaround from having dealt with vomiting several times EVERY DAY! He took Braxton off his medications since his vomiting was under control and considering he hadn’t been on them in over a week anyway.  We were waiting on refills, so he was without them, but turns out he doesn’t even need them now. Yay!

FINALLY! Finally, we have found something that works! But, that’s not even the best part.  Our Dr continued to examine Braxton, and then he sat Braxton right in front of him to examine him and Brax reached out to touch the doctors face.  His pacifier fell and Braxton leaned over the edge of the exam table to see where it had fallen.  When he realized it wasn’t there (mom picked it up) he focused back on the doctor.  He held steady eye contact and continued to reach out for the doctors face.  Braxton has a fascination with glasses, so we knew he was trying to get them off the doc’s face.  As the doctor moved back and forth Braxton continued to follow him and reach with both hands for his face.  The doctor then grabbed Brax under his arms to move him back and Braxton instead stood himself up to start bouncing, and all the while he was smiling….he was playing with the doctor.

And then it happened…. our doctor made a comment about how interactive Braxton was with him this visit and that he had never been like that before.  He said he was so happy to see such progress from Braxton considering where he was when he first saw him.  He said he was so happy that he wanted to CRY.  As I sat and watched him continue to play with Braxton I noticed the tears well up in his eyes and heard his voice waver as he tried to hold them back.  He had genuine emotion and was truly happy to see just how far Braxton has come.  It was an amazing moment.  Amazing to see that this man was more invested in my child’s success than I thought.  And it wasn’t simply the eating part of it.  He was thrilled to see Braxton growing and thriving and reaching milestones they never thought possible.  It warms my heart to know we have such a great doctor who truly cares for his patients. I wish I had gotten a picture, but I was just as caught up in the moment….and yes, I had to fight back tears too.  This is one of those moments we’ll always remember.  We may not remember today, but we will always remember the moment one of Braxton’s doctors was literally moved to tears over the outstanding progress little man has made.  This kid is destined for greatness.

6 Comments

Filed under Family, Kids and Family, Life, Special Needs Child

6 responses to “Remember the Moments

  1. I know we don’t know each other and our children’s experiences are different but I know these emotions. I know that sense of pride in your child and their progress and what means when the doctors show their genuine love for your child, it’s amazing. I wish nothing but continued success. Your family is our prayers.

    • I feel like some doctors are trained to expect the worst and display no emotion, so when we come across someone who truly cares, I’m taken aback and I’m ever so grateful their job means more to them than the money. I think I saw a link to your blog in a comment you made on a fb page (I wanna say it was the Tubie Whoobie page) and I’ve been following since. Also keeping you and your family in our prayers. Can’t wait to see what the future holds for our children. 🙂

      • Yes, we are a Tubie too! I love Tubie Whoobies! Reading your blog makes me feel like I’m not the only mom with a child with special needs. There are so many emotions, struggles, and balancing involved. It is nice to know that we aren’t the only family taking an unplanned journey with our children.

      • I know exactly what you mean! I didn’t realize the importance of finding other parents also on the journey. “Mommies of Miracles” on Facebook is great! They even have regional closed groups so you can connect with others too 🙂

      • I joined the Mommies of Miracles group, thank you for letting me know about it!

  2. Such a wonderful day! Thank you for sharing Vanessa!

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