Something’s Gotta Give

I’m really getting tired of reporting Braxton’s tummy woes.  It’s the absolute worst to follow everything the doctor tells you do, only to find that it is still not best for your little one.  Seems like we find a solution and it works for a couple weeks and then BAM! back to square one.  I was really excited when we added corn starch to Braxton’s feeds and were able to run his feeds over 30 minutes instead of an hour, but alas, the vomiting has returned.  I’ve documented everything, but can’t pinpoint exact cycles, so I’m not sure if I’m dealing with Cyclic Vomiting or if it’s simply all part of the Dumping Syndrome.  Everything I’ve read on CV though is pretty severe and a lot of kiddos end up in the hospital for it, so probably not that.  It’s just so frustrating! Even moreso when I can’t get a doctor to return calls while I’m dealing with a child who can’t keep his food down….if that’s not an emergency or at least worthy of a call back I don’t know what is! Possibly time to find a new doctor.  Yes, I know they have other patients and are very busy, but certainly not everyone who calls is vomiting uncontrollably! I’m just at my wits end and feeling like somethings gotta give; my sanity being most likely the first thing to do so.

After a lot of research, sleepless nights, and just misery watching my poor baby, I’ve finally decided it’s time for a change.  We’ve tried several different formulas, medications, and other remedies and they have all failed.  So, I’ve decided to tackle a Blenderized Diet for Braxton.  Just doing the research and trying to wrap my head around it all has me feeling a bit overwhelmed.  Brings back NICU memories when we were being released with endless discharge instructions and appointments to be made. But, we made it through that and we’ll get through this and hopefully it finally brings relief.  All of the research shows that a Blended Diet is healthier and has several benefits, so in the end, if it’s better for Braxton, then I’m all for it.  I’ll do whatever it takes to help my little man.  Many people who have tried Blended Diets did so because their child had several GI issues which included severe vomiting. Almost all who made the switch report that the vomiting stopped within the first week of switching, and many have said their child even started tolerating oral feeding as a result. [ I sound like an infomercial! Possibly still trying to convince myself here….who knows] If we could get Braxton eating by mouth again I would be ECSTATIC!! [So would our Speech Therapist!] There are still some conversations that need to happen before we can forge ahead, but some of the important ones have already happened.  Our Speech Therapist and Occupational Therapist are on board with this decision which is a blessing.  We need to talk to our GI doctor when we see him Thursday to get him on board, and a nutritionist so that we make sure we’re still getting Braxton all the vitamins, nutrients, calories, and everything that he needs to stay healthy and continue growing.

It’s all a little bit scary and very overwhelming, but I’m confident in moving forward with this decision.  I’ll definitely be keeping detailed journals on everything that we try so that we can come back and post here what worked for us.  I can only hope any of the information I write here might help anyone out there in the same journey.  I’m open to suggestions/advice too so if you have any helpful info on getting started, things to do/not do, recipes etc. use the form on the “Contact Us” page and send it over! Thanks in advance!

/// On a brighter note! Braxton took pictures at daycare a few weeks ago and we received our prints today of our handsome man!

Sweet little boy :)

Sweet little boy 🙂

Brax's little smirk like he's too cool for the camera

Brax’s little smirk like he’s too cool for the camera

6 Comments

Filed under Family, Kids and Family, Life, Special Needs Child

6 responses to “Something’s Gotta Give

  1. My mom’s church has joined in the prayers for Braxton. Love the pics.

  2. Good luck! I hope that it helps. As a side note, do you use zofran when he starts vomiting? If so does it not work? They think Matt has CVS but zofran is amazing. It has always stopped the vomiting.

    • We haven’t tried Zofran. I’ve asked about it but I think there’s a concern about it masking symptoms that we may need to rule out other possibilities. I used it when I was pregnant and it was truly a Godsend! I wish they would just give me a script to have on hand for him!

      • I would push it a little more.. I would think the constant vomiting is already a known symptom and if there is something that can help you need it. I hope that they are able to find something. Zofran is a godsend.

      • I’ll be updating later, but we started the blenderized diet this weekend and i stopped his reflux meds and did not add Corn Starch to his feeds and he did not vomit once all weekend! We’ll see how long this works.

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