And Now We Wait…

Arrived at Dell Children’s Hospital this morning at 7am. Got Braxton all checked in and prepped for surgery. We started later than planned, because the doctor was running late from another procedure he did this morning. They finally took him back a little after 9am to get started. One of the nurses told us they would be calling us with updates throughout the procedure. The hand part will take about 3 hours and then the ABR will be about an hour and half. I will keep editing this post as we get more info and to let you all know the outcome….Thank you again for your continued love and support.

9:47 am – Nurse called to say that Braxton was under anesthesia and doing well. Dr is starting on his right hand.

10:50 am – OMG! Hand surgery is done already! I thought they said it’d be 3 hours!? It’s only been an hour! Just spoke to the doctor and he said Braxton did great. He did need to do a skin graft on both hands, but they are very small and all should heal well. We’ve got some follow-up appts in the next 2 weeks, and all should go well. Brax is going to be so MAD though! The doctor said he’ll need to stay in his bandages for 2 weeks and so he can’t do anything that would manipulate his hands. It’s really going to kill little man to stay still. Now, they are doing the ABR which can take up to an hour and a half. If we’re lucky that will be done quickly too!

11:40am Nurse called and Brax is still doing well. They are about halfway through the ABR. Next time they call it will be to speak to the audiologist. Then we get to see him in the recovery room. Ugh I’m the worst at this waiting game. Patience is a virtue I do NOT have.

12:10 pm Nurse called and said the audiologist would be with us soon.  Spoke to her and Braxton’s hearing hasn’t improved.  These results confirm his last test which shows a mild hearing loss in both ears.  She says we still definitely need hearing aids and it’s great that we’ve gotten them already. Good news is that his hearing hasn’t gotten worse and assuming everything else (i.e. brain structures, voice etc) is ok he should be able to speak just fine, bad news is that his hearing most likely will not improve over time. I suppose it’s always a possibility, but she says she hasn’t really seen that happen in her 37 years doing this.  At least we have everything going already that he needs to be able to start talking to us, and hopefully we don’t learn later that his brain structures may keep him from speaking.  For now, we WILL be optimistic. It’s only a matter of time before he starts talking like crazy 🙂

The Next Update will be a new entry after we’ve seen him in recovery and have him home safe and sound.

 

Some pictures to make you smile. Braxton is truly the happiest baby even in the worst of times.

5 Comments

Filed under Family, Kids and Family, Life, Special Needs Child

5 responses to “And Now We Wait…

  1. Pingback: Farewell 2012! | Undiagnosed

  2. Greetings! This is my 1st comment here so I just wanted to
    give a quick shout out and tell you I genuinely enjoy reading through your blog posts.
    Can you suggest any other blogs/websites/forums
    that cover the same subjects? Thanks a ton!

  3. howdy! i love love love your entries! my daughter went through syndactyly surgery last year. i am going to blog the experience as well! Kisses to Braxton!

    http://deardaryai-nur.blogspot.sg/search/label/syndactyly

  4. Pingback: Appointment Recap and Surgery #4 | Journey Full of Life

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