A Step Back

Well, the saying goes…”2 steps forward, and 1 step back.” That’s been the case with Braxton since the beginning.  He accomplishes something great or we get good news, and then all of a sudden something isn’t right. =/

In the week or so before we ended up in the hospital with pneumonia, we noticed a decline in Braxton’s appetite.  Just so you know where he’s fallen from. Braxton was on breastmilk for 10 months (yes, I pumped all that time for him) and then on Similac Advance Formula for the last 2 months of his first year.  He was up to taking 6 ounces, 5 times a day.  He has the G-Tube, but we offer him a full bottle and let him drink what he will, then we put the rest through his tube.  He was drinking anywhere from 4-the full 6 ounce bottle ANNNDDD even eating a FULL jar of pureed baby food 3 times a day…no you know where all his rolls came from! Hehe Well at his 1-year birthday his GI doctor switched him over to Pediasure instead of whole milk.  Since Braxton was not eating a “normal” diet for a one year old the Dr did not want him to become malnourished and start losing weight. Pediasure would give him all the calories he needed plus all the vitamins and nutrients he needs. Anything we gave him above that would just be extra and useful in preparing him to learn to eat on his own.

At first, Braxton was throwing up EVERY feed as soon as we switched over to Pediasure.  Turns out with the higher calorie content of Pediasure, it was like we were overfeeding him compared to the formula he was on previously.  Basically it was like we had jumped from 6 ounces to 8 ounces of formula. Well naturally that would cause him to throw up….but I’m afraid from this point on the damage was done.

We played with the volume a little bit and gradually worked him back up to the 6 ounces 5 times a day. But, he stopped taking the bottle and stopped eating the pureed foods. 😦 We got him up to drinking about 3 ounces but still he would only take about half a jar of baby food as opposed to the full one he was getting before.

Well before the hospital stay, he pretty much stopped eating altogether.  We had to put his entire feed through his G-Tube and he wanted nothing to do with the pureed foods.  Working with our speech therapist, we decided that because of all the vomiting he had done that his throat was probably sore and it was actually hurting him to eat. As he began to associate the hurting in throat or nausea with feeding, he just decided to stop eating.  We will eventually stop doing something that causes us discomfort or pain, and that is what Braxton did.  Then he ended up in the hospital and didn’t eat for 3 days [he was on IV fluids getting the fluids and electrolytes he needed, but no food].  Now, Speech therapist says that in that short time it could be that his stomach shrunk so the 6 ounces we are giving has again become too much for him. Blah. So we’re back down to 5 ounces and gradually working back up to 6.  Thankfully the 5 ounces is staying down, but he seriously just wants absolutely NOTHING to do with the bottle or food.  We’ve only been able to get him to take mayyybe an ounce of his bottle, usually half an ounce and only like 4 bites of food.  This is a HUGE regression and not a good thing at all.  😦 He’s also been teething for what seems like FOR-EV-ER! He had a corner of tooth poking out, but it’s gone back into the gum. His gums do like a bit swollen and he’s gnawing on everything he can get his hands on, so this could also be contributing to his lack of appetite, but we don’t know for sure.  So many variables here.

Between us and the speech therapist, we are at a loss.  Pretty much out of ideas to work him back up to eating like he was before.  Called his GI doctor today, but haven’t heard back.  He would be the one to give us other suggestions or make some kind of change.  We see him next Monday anyway, but I thought this was enough of a concern for him to address sooner rather than later…he must not think so or he would have called back. UGH.

Uber frustrated.

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Filed under Family, Kids and Family, Life, Special Needs Child

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